EL PASO, Texas -- Jason Folie, a 35-year-old man from Waseca, Minnesota, is going blind, but his vision is saving sight.
Folie was diagnosed with Choroideremia (CHM), an X-linked recessive retinal degenerative disease that affects roughly 1 in 50,000 males in the United States. CHM begins with night blindness at a young age, followed by loss of peripheral vision, and eventually leads to total blindness. There is currently no treatment or cure for CHM.
Folie is biking cross-country to bring more awareness to CHM and raise $100,000. Jason's Journey began January 7 in San Diego. He is traveling the Southern Tier Trail over 3,000 miles to St. Augustine, FL, making stops throughout California, Arizona, New Mexico, Texas, Louisiana, Mississippi, Alabama and Florida.
Folie emphasized, "This is not for myself, but for the research that is needed to find a cure. For the boys, and men who are in my shoes and don't want to admit it but are terrified of that dark day in their future."
To support Jason's Journey, please visit: https://donate.curechm.org/fighttoendCHM.
You can also follow his cross-country ride on his Facebook page: https://www.facebook.com/watch/Fight-to-End-CHM-Jasons-Journey-116372389765244/